Living With Sarcoidosis & Other Chronic Health Conditions
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- ISBN13: 9780595321148
- Condition: USED – VERY GOOD
- Notes:
Product Description
Living With Sarcoidosis & Other Chronic Health Conditions gives firsthand accounts of what life is like when you experience chronic health conditions, as only a patient can articulate, by way of patient stories, support options, insurance tips and a doctor interview. Although each situation is unique, they are also so similar and it’s those similarities that helps us cope in a positive manner with our current situations, regardless if you are the patient, caregiver… More >>
Living With Sarcoidosis & Other Chronic Health Conditions
Stop Suffering the Living Hell of Sarcoidosis With Natural Alternatives and Without Drugs or Surgery
11. February 2010 - 8:38 am
No practical info whatsoever for a sarcoidosis patient like myself, too whiny and I wasn’t interested in his relationship with god! Rating: 1 / 5
11. February 2010 - 8:59 am
If you have read Barr’s other book, “Me and Sarcoidosis: A Lifetime Partnership”, you already know that his grammar leaves one wondering where his “editor” that he speaks so highly of got her training. My guess is that it was a friend who cringed at his errors, and while this is somewhat improved, it still needs much work to flow properly.
Being a sarcoidosis patient myself, I dragged through the books in hopes of learning how to deal with the disease, and how to treat it. By the time I got through this book, I was skipping lots of repetition from prior chapters.
I agree that there was too much focus on the worst case. Conversely, the writer may feel that he received solace from his religious beliefs, but I felt like he tried too hard to push that while being soft on useful facts.
I did think this was an improvement over the first book, as it didn’t focus so much on Barr’s own case, but I’m still looking for something more useful out there. Rating: 2 / 5
11. February 2010 - 11:38 am
Lots of nice resources appear in the book and the author’s story and those of his selected pen pals are frightening “worst case” sorts of hsitories. Unfortunately, the book is poorly written: passive, repetitive style and odd gramatical constructions distract the reader from the engaging content. Moreover, the focus on worst case scenarios and incompetent medical professionals is at great odds with my experience: I’ve been diagnosed with sarcoidosis twice in the past 7 years (I had a remission), each time within a month of odd chest X-rays, and each time in the absence of any symptoms whatsoever. Each time the doctors were very much on top of results and very quickly got me to specialists. Since I’ve never had a SINGLE symptom, the worst cases described in the book just don’t speak to me, and may frighten readers unnecessarily. Rating: 3 / 5
11. February 2010 - 1:05 pm
As a sarcoidosis patient since 1996 I found this book to be a refreshing realistic look at how people cope with chronic health problems and the issues most of us face. Although each situation was different, and in some cases unique to anyone I know, there were many physical and emotional aspects that I could identify with in regard to my life. Personally I didn’t take the author as being negative but instead honest about what happened to him and the others. Sometimes things happen in life that aren’t always good and it’s good to finally hear someone talk about the problems instead of looking the other way, as most tend to do. Of course there are people who don’t experience problems (I wish I was one of them) but bringing them out and addressing them in order to turn them positive isn’t whining. The author does have a unique style of writing that might bother those who weigh in on every aspect of the English language but personally it helped me relate even more so to the book because I know the author is one on us! It takes a lot of guts to share with the world your health life. If you can look at life and your situation with an open mind this is an excellent read for anyone dealing with sarcoidosis or any other health situation. Rating: 5 / 5
11. February 2010 - 3:30 pm
Maybe it is just me, but I found the author’s attitude to be so negative as to negate some of the information. I have a severe case of sarcoidosis and am going through the steroid and now a low dose chemo drug therapy. It is life changing, but I am not going to let it ruin my life. I am blessed with good doctors and a wonderful support system of family and friends. I continue searching for information on this disease in a positive manner. Rating: 2 / 5